My name is Kelly Parsons Kwiatek, and I’m the Immediate Past Board Chair for Easterseals Northeast Central Florida and Senior Vice President and General Counsel at Halifax Health. At Halifax Health I am responsible for “all things legal” within the Halifax’s healthcare system. In my board position with Easterseals, I participate in the oversight and strategic direction of the organization. (I also see myself as a sounding board for our President/CEO Bev Johnson when needed.) If my calculations are correct, I began my role on Easterseals’ board of directors 15 years ago, and I never looked back. Like many volunteer leaders at Easterseals, my relationship with the organization has a personal beginning. When I was a little girl, my mom was the fundraising chair for our local Easterseals. Among other accomplishments, she helped start the Harley Davidson Bike Raffle (with the help of then-staff member Mary Harowski). That annual raffle raised thousands for local Easterseals families during its glory days. If you’ve been in Daytona Beach for many years you may remember the Harley raffle. I have memories of my mom going nightly to Main Street in Daytona Beach during Bike Week to volunteer, all dressed in her (conservative) leathers. She’d take donations for raffle tickets for Easterseals, getting bikers excited about the chance to win that pristine machine. Every year she’d take me with her for a daytime shift so I could help. That’s how my involvement with Easterseals began…via my mom! Another reason for my passion for Easterseals is the experience that my family has had with my aunt. She was born with cerebral palsy. She went through several surgeries as a child, but she didn’t have the benefits of Easterseals programs. I feel they would have changed her life for the better. I was very close with her and had always wished for her an improved quality of life in several respects, which is what I feel Easterseals does for clients and their families. Our services are irreplaceable. Looking ahead, I’m excited for all the events on the horizon at Easterseals; I hope you can become involved in them too! Over the Edge at ONE DAYTONA on November 1-2 and Walk With Me in April…those are the kinds of events that are important to our Easterseals community. During those times, we share moments as a group of people within our “family” who assemble – be it for a few minutes or a few hours – to support each other and the cause. It’s meaningful. Easterseals Northeast Central Florida gives people in our community -- real people who we know who are going through a difficult or transitioning time – something vitally important: hope. It gives them hope through community and guidance and services. Is there anything more powerful? I invite you to learn more about Easterseals Northeast Central Florida and consider giving your time and resources to help us continue to make a difference as we take on disabilities together. I’m proud to serve as your Immediate Past Board Chair and thank you for all you do to help Easterseals make an impact every day. What a wonderful mission to be a part of. Do you have a preschool child who is challenged by special needs and/or disabilities? Easterseals Charter Schools may be the perfect fit for your little one. In Daytona Beach and DeLand, Easterseals Northeast Central Florida Charter Schools provide hands-on and comprehensive education for students ages 3 to 5. The inclusive classroom setting integrates students with special needs and typically developing students with the Easterseals Child Development Center. This helps all students achieve the best possible outcomes. Just take a look at Walter, a student who graduated last year from the Easterseals Charter School in DeLand. “Walter loves school,” noted his mother. “So for us it was just important that he felt safe and welcomed. Easterseals Charter School was fun for him, and he looked forward to going every day.” Walter’s teachers ensured he transitioned well and gave him whatever downtime he needed. They accommodated his schedule and kept his parents aware of any issues in the classroom. “My son felt safe and comfortable to grow and learn at Easterseals,” Walter’s mom said. “I can’t ask for more from a school.” When it was time to leave the charter school, Walter was ready to face new challenges and learn with his brother and friends at a public school in DeLand. Fast facts about Easterseals Charter School:
Additional programs offered at Easterseals Charter School:
Easterseals Charter School’s Lead Teachers hold teaching certificates from the State of Florida, and must meet the same requirements as teachers in Volusia County public schools. Furthermore, Associate Teachers must have a minimum of an Associate’s Degree (two-year degree) in the early childhood education field. Preferred teacher’s assistants hold a CDA credential. All teaching professionals at Easterseals Charter School are offered opportunities for development and continuing education. Want to know more about Easterseals Charter Schools? Visit us online or call 386-944-7801. Get to know more about why Easterseals Charter Schools may be the perfect learning environment for your little one. It’s hard to believe, but summer vacation is more than halfway over. And while many students need a few weeks to get accustomed to a summer schedule, the same is true for the start of school after a summer full of different routines, environments and structure. Children on the autism spectrum may need extra help and support transitioning back to school too. Easterseals Northeast Central Florida is here to help. Below we’ve collected suggestions on how to best assist young people with autism in successfully starting the new school year; suggestions that also will help parents and caregivers chart the course with greater ease:
And finally, ask for help when you need it, and leave the past in the past. Every school year is different, and challenges change along with them. This year won’t be like the ones before, so be ready with resources and an open mind. Reach out to your friends, family, and your Easterseals support team. We are here to help you and your child succeed in the new school year…and all year round. Sources: AutismSpeaks.org, IanCommunity.org, Chla.org By Bev Johnson President/CEO of Easterseals Northeast Central Florida This April, Easterseals Northeast Central Florida welcomed 100 teams and more than 650 participants to its annual Walk With Me fundraiser at Jackie Robinson Ballpark. This year’s event was as impactful as always – bringing awareness to Easterseals' many abilities-focused programs that help young and old reach their highest potential. It also celebrated national Easterseals 100th birthday, which was April 22. It’s true: Easterseals has advocated for people with disabilities for 100 years. But what’s worrisome is how effectively Easterseals will be able to affect the next 100 years with the limits imposed by insurance companies. Our effectiveness in the next century will not be limited by expertise, need or heart; it will be limited by health equity that’s on the verge of extinction. After years of decline, Florida’s uninsured children rate increased in 2018. The issue entered the spotlight when the Georgetown University Center for Children and Families released a report not long ago that stated Florida, after years of declining numbers of uninsured kids, is seeing an increase in uninsured children. It’s a sudden, unsettling trend that all of us should care about, and we should anticipate it will continue until we collectively decide that it’s unconscionable. The report’s authors, Joan Alker and Olivia Pham, state that 12 states had rates of uninsured children that were significantly higher than the national average, and Florida’s included. Of the state’s youth (18 and under) population, 7.3 percent are without health insurance –- that’s around 200,000 children. The authors flatly declare: “The nation’s many years of progress in reducing the number of uninsured children came to a halt and reversed course in 2017.” Florida is at the top of this most unfortunate list. Easterseals Northeast Central Florida, which offers services throughout Volusia and Flagler Counties, experiences this insurance-coverage deficit daily. In addition to offering scholarships to families whose children are uninsured, Easterseals also often offers scholarships to children who are underinsured. This means that families have commercial health group insurance, but their policies do not offer specific therapy disciplines, or they may be severely limited in quantity. (For example, the health group insurance may offer 30 therapy sessions for the child, versus the recommended 3-times-per-week for 6 months recommendation by healthcare providers.) Alternatively, the deductible may be so high that families can't possibly fund services before co-pays set in. The number of children enrolled in Medicaid/CHIP and non-group coverage declined this year in Florida. Why? According to Alker and Pham, factors include national political efforts to repeal the Affordable Care act, the cap on federal Medicaid funding, and the unprecedented delay by Congress to continue CHIP funding (which allowed for its temporary lapse). Further, the study reveals, because many of Florida’s children have immigrant parents (though these children are U.S. citizens themselves), and because the current Administration has instituted policies that target immigrant communities, it’s likely these parents are deterred from enrolling their children in national healthcare programs. According to KIDS COUNT, a project of the Annie E. Casey Foundation to track the well-being of children in the United States, 1.355 million children of immigrant parents lived in Florida in 2016. The number increases yearly. Why does Easterseals care? Why should you care? Easterseals understands that when children do not receive the healthcare they need, they are less successful in school. And then, this lack of achievement follows many of them through life, affecting their ability to thrive as productive members of our communities. This long-term reality impacts our economy, our healthcare system, our workplaces and our neighborhoods…everything. Let’s be Americans who believe in achieving health equity for all Americans. When we believe this, we must support the position by our actions. We need to urge our Representatives to focus on child healthcare priorities. Call the District offices in Washington, DC (202-225-2706), DeLand (386-279-7343), Palm Coast (386-302-0471) or Port Orange (386-756-9798). Our country has the most advanced medical care available in the world. However, how well we can access this care largely depends upon our health insurance allowances. For the vulnerable of our communities – including children who are uninsured and underinsured – obtaining the health care needed to thrive isn’t a right; it’s a privilege. Easterseals is doing its part. Florida, will you do yours? Andrea, Barry and Chantel: They may not be your next-door neighbors right now, but they’re the first three names on the Atlantic tropical cyclones list this year. So, it may be inevitable that you will get to know them! Hurricane season began June 1. There aren’t many hurricane seasons that pass by anymore without a major storm, so the first question today is: Are you prepared? The second question is: Are you prepared to have the smoothest possible experience during a storm as you care your child with disabilities? Now is the time to talk with your children about hurricanes and storms that occur during this time of year. Emphasize that safety is the priority, use age-appropriate language and address their fears and concerns at the get-go. When you’re ready to start preparing, the Federal Emergency Management Association (FEMA) offers several tips for caregivers who play in important role in hurricane preparedness for those with disabilities:
Children on the autism spectrum may have additional needs that should be addressed to successfully navigate severe weather. You can help your child adjust to new surroundings and ease their stress by doing the following:
Remember the usual disaster-supply kit items too. Don’t underestimate the value of an emergency kit that includes items every family should have on hand, such batteries, flashlights, a battery-powered radio, food and hygiene items. Can the kit be easily loaded and transported in your car, with room enough for the family to ride too? A simplified “go-to bag” for your child is another smart idea. Include in it your child’s basic hygiene items, a few changes of clothes, books, games and any necessary medications. As a matter of fact, it’s a great idea for any member of the family! Make one for each family member and include them in the kit. Experts have additional ideas to invite calm into these stormy situations:
When the storm has passed and you’re back home safely, keep an eye on your child and watch for any concerning changes in behavior, or sleeping or eating habits. Residual anxiety can last a while after the hurricane has passed; seek professional help if you’re concerned about post-traumatic stress. Click on the source links below for more details and tips, and as always, consult your Easterseals Northeast Central Florida team members if they can be of service as you prepare. Easterseals is here to support you. Remember, as Richard Cushing once said, “Always plan ahead. It wasn’t raining when Noah built the ark.” Together, we can be prepared for storm season and help our children have the calmest and most secure experience possible. Sources: Lovethatmax.com, hurricanepreparednesstips.com, fema.gov, savethechildren.org, nhc.noaa.gov By Guest Blogger Diana Lindley My name is Diana Lindley and I’m a proud Easterseals Northeast Central Florida team member. One of my responsibilities at Easterseals is assisting with the Community Equipment Loan Closet. The Community Equipment Loan Closet is a community resource intended to support anyone with physical challenges or disabilities. All equipment is loaned at no charge; Easterseals asks individuals to make a small donation to support the program. The Community Equipment Loan Closet provides canes, crutches, shower chairs and benches, folding walkers, four-wheel walkers with seats and wheelchairs. Recently, I received a note from a client named Sandy describing how much our Loan Closet program has meant to her. She wrote, “Thank you so much for the use of the shower bench! After nearly three weeks (of doing without), being able to take a shower felt like paradise! It was the best shower of my life. “It’s the little things we so often take for granted,” continued Sandy. “Thank you for the service you provide our community. It is truly needed and very much appreciated!" It’s such a good feeling to know that those living in our community have the opportunity to live a full life and have not been forgotten. It always puts a smile on my face knowing that a piece of equipment that was needed was received and knowing how happy it makes the recipient feel. I’m proud to be an Easterseals advocate. We at Easterseals help others by showing love and support to families so they do not feel alone and by providing the services and programs that meet the needs of the families. It is a team endeavor, not a one-man show. When you put the needs of others before your own needs, your life is better for it and you are truly blessed. *** Are you interested in supporting Easterseals’ Community Equipment Loan Closet? Loan Closet accepts donations and always needs donations of durable medical equipment. Simply drop off the equipment weekdays between 9 a.m. – 4 p.m. Easterseals, 1219 Dunn Ave., Daytona Beach, or call to arrange a pickup of large items or large quantities of items. For more information, call 386-944-7821 or toll-free 877-255- 4568, ext. 321. Easterseals Northeast Central Florida is enrolling eligible children for its free voluntary pre-kindergarten (VPK) at its Child Development Centers in Daytona Beach (1219 Dunn Ave.) and DeLand (306 Wisconsin Ave.). To participate in free VPK, a child must be four years old on or before Sept. 1, 2019, be a resident of Volusia County and have a valid Certificate of Eligibility (COE) from the Early Learning Coalition. As part of the program, children enrolled in free VPK receive breakfast. Easterseals’ Child Development Centers provide exceptional student education programs for eligible Volusia County students, including a VPK program, a pre-school that accepts children ages 12 months and older, and charter-school classes. Easterseals’ VPK program offers hands-on and comprehensive education for Pre-K students ages 3-5 with special needs and/or disabilities as defined by their Individual Education Plan (IEP). Easterseals Child Development Centers’ inclusive classroom settings integrates its students with typically developing students of the Easterseals Child Development Center, which assists in helping all students achieve the best possible outcomes. Further, its adult-to-child ratio exceeds the state requirement, allowing for more individualized attention for each child in our care. IEPs outline specific goals and objectives for students to meet his/her own potential. For information about COE, contact the Early Learning Coalition of Flagler/Volusia at (386) 323-2400 or elcfv.org. For information about Easterseals Northeast Central Florida’s Child Development Center in Daytona Beach, contact CDC Program Coordinator Erica Garris for information or a tour at (386) 944-7819 or egarris@esnecfl.org. For more details about the DeLand location, contact Assistant Principal Christina Hopkins at 386-734-4124 or chopkins@esnecfl.org. For information about how Easterseals is taking on disability in our communities, visit www.eastersealsnecfl.org. Blog post contributed by Adrienne Abercrombie, Deaf Advocate / Case Manager, Deaf and Hard of Hearing Services / Easterseals of Northeast Central Florida “CODA” stands for Child of Deaf Adults, which means that you are a hearing child with deaf parents. There are not a lot of people in this world that knows what a CODA is, unfortunately. When you elaborate on what it means, all of a sudden, they become so interested in your life as if you were some celebrity rock star, asking you so many questions that just does not make sense. “I didn’t know deaf people can have children…” “Can deaf people drive?” I really did not feel like a rock star. I felt more alone in this world than anything. No one truly understood what it was like to be me, a CODA. I did not talk. I did not want to use my voice to speak. I spoke with my hands and I truly believed I was your normal, average kid. I did not realize that I was different from everyone else. I thought I was deaf. Thanks to both of my parents, I had less than a handful of friends who understood exactly what it was like to be me. Thank God, they were CODAs too. I felt so close to them, more than I did with anyone else. I felt like they were my siblings. We had so much fun together and I did not have to pretend to be like everyone else. I was always me. My words were coming out all wrong. I struggled with my grammar. I knew only what I was able to hear. My mom ended up putting me in speech classes, with the schools advice, in order to learn how to pronunciate my words better. They told my parents that they were holding me back in kindergarten due to my speaking skills. My parents were so disappointed as if they had done something wrong. However, they did nothing wrong at all. It was then that they had decided that moving closer to my grandmother was the best thing to do in order for me to succeed. My grandmother was an intelligent woman and very soft spoken. It was easy to learn how to speak with her help. I had become attached to her. She understood me. She was my second mom. I will never forget this one day, my mom and I were walking through the grocery store, chatting with our hands. There were two girls, around my age, walking in the same aisle. They were following behind us with their hands over their mouths, whispering. I immediately knew they were making fun of us. I could feel it deep down in my gut. They started flapping their arms around imitating sign and giggling. This was not funny at all. In fact, this hurt my feelings. I tried to ignore them but, as they got a little bit closer, I could actually hear the words they were saying about us. All I wanted to do was shut down and cry. Deaf people do not enjoy being made fun of. Really, who does? I turned around and said, “Excuse me?” and, to my surprise, they both ran off, shocked, that I had heard everything. I felt so incredibly powerful in that moment while my mom, on the other hand, had no clue what had just happened. “Is your mom is Deaf and Dumb?” or “Is she a Deaf Mute?” I hear these two mostly used phrases all the time when it comes to explaining my life. Deaf and Dumb? Deaf Mute? Who came up with these titles? Just because you cannot hear, does not mean you are dumb or have no voice. Deaf people are just like hearing people except their ears are broken. That is all. This killed me on the inside. I was skeptical telling people that both my parents were deaf. I did not want to have to deal with all the crazy questions that came along with it. It never dawned on me that having deaf parents was actually something special. As time went on, I realized that it was actually GREAT having deaf parents! I could talk to my parents and CODA friends through windows. I could talk to them in complete privacy and no one knew what I was saying. I could even sneak out of the house, falling down outside of the bedroom window and knocking things over in the process, without being heard. (Sorry Mom!) I could even to jam out to my favorite music, singing out loud, as loud as I wanted, in whatever voice I wanted. I never got into any trouble. My dad would only tell me to be quiet when he said he could feel the vibrations, but in my mind, I was a rock star! I felt like I had no barriers. I was completely unstoppable! When I look back at my life, I realize that being different has taught me to have more compassion for those with disabilities. I understand wholeheartedly what it is like to be deaf because I thought I was deaf. Being raised in both the hearing world and the deaf world has shaped and formed me to be the proud CODA that I am today. I subtly mingle with the deaf world and they believe I am deaf because I act as if I am deaf. I am no longer afraid to answer the crazy questions that the hearing world asks nor am I afraid to educate people. I want everyone to understand that being deaf does not mean anything except their ears are broken. They do not need to be judged or looked down upon. They deserve every opportunity that a hearing person has in this world to succeed. My advice to the hearing world - go ahead and learn sign language now while you still can. It really is not a waste of your time. Whether you do it now or later, face it, your hearing will eventually fade. If you already know how to speak in sign language, you will not feel so lost when you do become deaf. Think about it, really, why wouldn’t you want to know sign? It's empowering. ABOUT THE AUTHOR: CODA Woman - Child of Deaf Adults Adrienne Abercrombie is the Deaf Advocate/Case Manager at Easterseals Northeast Central Florida which is located in Daytona Beach. She is a freelance and contracted ASL Interpreter since 1997 – 22+ years of experience as a Qualified Sign Language Interpreter, and has also worked at Sorenson Communications for 5+ years. She is always involved in the deaf community, enjoys attending deaf events and is always there to give a helping hand whenever it is needed. Her mother, Amy Barber, was the Deaf Advocate/Case Manager for 10+ years at Easterseals before she retired and Adrienne came in and took over the position to ensure the deaf community could continue to get the help that they need and deserve. Her father, John Hogg, was a Sign Language Professor at University of South Florida/Polk Community College in Lakeland, FL and her stepfather, Chuck Barber, was a Sign Language Professor at Daytona State College in Daytona Beach. Her grandmother, Pat Lozell, was strongly involved in the deaf community after retiring as a model in New York and believed in advocating for deaf rights. Pat did everything she could to help the deaf. She worked for the St. Augustine School for the Deaf and Blind which is located in St Augustine, FL. She also worked for Deaf and Hard of Hearing Services in Daytona Beach along with the FTRI department distributing specialized telephones to the deaf and hard of hearing. Deafness is hereditary on one side of her family but not on the other. She has a lot of family members (aunts, uncles and cousins) whom are deaf from birth. She also has some family members who have become deaf over time. Everyone in her family are big advocates for the deaf and they are constantly trying to ensure that they are treated fairly in every perspective of their lives. “Equality is the key to living a happy life,” Adrienne says. Star Legere has been a paraprofessional in Easterseals Northeast Central Florida’s classrooms for three years. In her position, she assists lead teachers and works with children on their individualized developmental goals, helping them reach – and surpass – them. Star said she finds that many folks have a misconception about what it means to be a paraprofessional. “One thing most people don’t understand about being a paraprofessional is that it’s not a babysitting job,” she said. “I’m there to help children grow to reach their fullest developmental potential and to care for their needs.” Star is dedicated to children’s growth and understands how important her relationship with students’ families is. “What I enjoy most about working with families through Easterseals is bonding with them,” said Star. “Connecting with the families helps me understand their children’s needs better.” Star said she loves working in Easterseals’ team-focused environment; it has helped her become a better paraprofessional. “There are other people (on my team) whom I can count on when I need help, or when I need to review ideas that most help the families we serve,” she said. Star never stops pursuing learning opportunities; it’s one of the reasons she’s right at home on the IMPACT Team at Easterseals. IMPACT is a team of Easterseals leaders who are creating positive changes at the organization. The inaugural team was formed this spring as a result of strategic planning at Easterseals and is a method for enhancing employee engagement. Personal growth and professional development remain important to Star. “When I first began at Easterseals I had my CDA (Child Development Associate) credential,” she said, “and, through working with my encouraging coworkers, I now have my associate’s degree in Early Childhood Education.” Star has immediate plans to continue her professional development too: She will be pursuing her director’s credential in late summer. “When people think about Easterseals, I hope they think of the caring and loving people that help their children reach their developmental goals,” said Star. “It’s a happy environment.” Indeed, with Star on the Easterseals team, it seems that her students’ potential – as well as her own – has no limits at all. *** If you have a love of teaching or an interest in helping children and adults with disabilities reach their fullest potential, you may have a place at Easterseals. All current job opportunities may not be available online, so contact HR Generalist Fran DeCinto at careers@esnecfl.org for more information. In the meantime, complete our application for employment opportunities, available here. Additionally, Easterseals has partnered with GettingHired.com, an online resource that connects people with disabilities to employers in search of qualified jobseekers with disabilities. Visit www.GettingHired.com to open your door to opportunity! Easterseals of Northeast Central Florida serves the region with facilities in Daytona Beach, DeLand, Bunnell, and Leesburg. To learn more about Easterseals of Northeast Central Florida, please visit www.eastersealsnecfl.org. Easterseals of Northeast Central Florida serves the region with facilities in Daytona Beach, DeLand, Bunnell, and Leesburg. To learn more about Easterseals of Northeast Central Florida, please visit www.eastersealsnecfl.org. In response to kids' playtime crisis, Easterseals Northeast Central Florida and the Early Learning Coalition are teaming up this summer to remind adults why children need to "play on purpose" by offering unique educational and interactive events offered in Daytona Beach. The Play on Purpose (POP) events will be held at Dave & Buster's, 1507 Cornerstone Blvd., at the following times and days: 5 -7 p.m. Thursday, June 27; 12 - 2 p.m. Tuesday, July 9; 5 -7 p.m. Thursday, July 11; 12-2 p.m. Tuesday, July 23; and 5 - 7 p.m. Thursday, July 25. The cost is $35 per person. Business casual/casual attire is recommended. Why is playing on purpose an important issue to address in our community? In short, being a kid today isn't what it was 50 years ago. Children don't play as much as they once did – structured after-school activities have replaced spontaneous get-togethers, and free time has been replaced with scheduled activities. This reduced playtime has contributed to increased mental disorders in children, higher instances of childhood anxiety and depression and increased suicide rates among older children and young adults. The "play deficit" children face today is real, consequential and unhealthy, but thankfully, it's also reversible. Easterseals' POP events are formatted to educate adults as to why kids need more playtime and allow adults to engage in their own purposeful play in the process. At every event, participants will experience an interactive presentation about the value of playtime for children, engage in play challenges with other group members, enjoy tasty hors d'euvres and refreshments and then will be set free in Dave & Busters with a $10 play card to get more playtime in and to use their newfound knowledge. RSVP for an upcoming event below, or contact Susan Moor at 386-944-7820 at smoor@esnecfl.org to schedule at POP event for your organization. Register on your preferred date below: June 27, 5 - 7 pm July 9, 12 - 2 pm July 11, 5 - 7 pm July 23, 12 - 2 pm July 25, 5 - 7 pm Together, we'll erase the "play deficit" for the children of our community and launch the #MovementToMove! |
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